HEAL UoS

HFEA consultation on mitochondrial replacement

In 2012, Genetics, Reproduction on December 14, 2012 at 4:12 pm

The HFEA’s consultation on mitochondrial replacement was launched in September 2012, to consider the social and ethical issues arising from these techniques. The Oversight Group’s terms of reference can be found here, and the members are listed here. HEAL responded to the consultation (which closed last week). Our full response can be read here: HFEA mtDNA 2012 HEAL consultation response.

Our closing remarks cautioned that:
“Assuming either technique is to be permitted for human use it is vital that appropriate follow-up studies should be undertaken (and financial resources made available to support the research) to measure the levels of both short and long-term risks, not only to the offspring, but where relevant, to future generations, following mitochondrial replacement. Without such research there will be insufficient data for prospective patients to assess the levels of potential risk vs their desire for a child that is genetically related to them.”

We look forward to reading the outcome of the consultation in 2013. Previous blog posts on this area can be found here, here and (more tangentially) here.

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