HEAL UoS

Considering Dementia Awareness

In 2012, Capacity on May 28, 2012 at 11:21 am

Just a quick post, unfortunately belatedly, to highlight Dementia Awareness Week 2012 (May 20-26 2012) especially the Alzheimer’s Society’s campaign to ‘remember the person’, accessible here. The ‘faces of dementia awareness’ page highlights the lived experience of a few people with dementia, with Caroline’s story really bringing home the fact that dementia is not an ‘older persons’ condition – her story highlights her experiences of receiving an Alzheimer’s diagnosis when aged 52.

Last week the Huffington Post reported the results of a YouGov survey of over 4000 adults, commissioned by the Alzheimer’s Society and Saga Homecare, had indicated that almost 2/3 of people surveyed were worried about developing dementia. The Chief Exec of the Alz’ Society, Jeremy Hughes, was reported to have said: “There is currently no cure and people aren’t getting the care they deserve. However we know that with the right support people can live well with the condition for a number of years.”

Sadly enough, a recent discussion for a carer known to one of the HEAL team, who is caring for her husband aged 63, diagnosed with a rare form of dementia, bears his comments out only too well. Despite being ‘in the system’ for almost two years there is no support yet in place. She bears the burden of 24/7 care alone, with the only respite coming from family and sometimes friends. This may be a geographic ‘blip’ in the provision of support services, but it is certainly not a one-off scenario.

Unfortunately there remains far too little understanding of dementia, and crucially its impact on both those with a diagnosis and their carers – there is much work to be done to further raise awareness.

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